| Below are links we have compiled for your use. We are always interested in hearing about your favorite sites, so please e-mail us if there is a link you would like us to consider listing!
Our Partners
Advocacy, News, and Current Issues
General and "Gateway" Websites
Información en Español
Leukemia Resources
Lymphoma / Hodgkin's Disease Resources
Non-Hodgkin's Lymphoma Resources
Myelodysplastic Syndromes
Financial Assistance
Emotional Support Resources
Young Adults with Cancer
Transplantation – stem cell, cord blood, bone marrow, and donating the same
Clinical Trials
Links to cancer resources in other countries
OUR PARTNERS
Gilda's Club Chicago
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ADVOCACY, NEWS AND CURRENT ISSUES:
The Children's Cause is a great place to learn more about national policy issues that affect research, health care, and follow-up services for cancer survivors.
Reuters Health provides consumer-friendly news on health issues. You can either click on "Health eLine" on the left menu bar to see the most recent health news, or click "search" at the top of the menu bar to search for specific terms.
Journal articles summarized by OncoLink
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GENERAL AND "GATEWAY" WEBSITES:
American Cancer Society: This site has a wealth of information on specific conditions, statistics, treatment options, medical updates, and so forth.
Association of Cancer Online Resources: This site has a great deal of information on specific diseases, clinical, trials, mailing lists, support resources, etc. Again, links to specific diseases are listed below, although we encourage you to look over the site on your own.
Brave Kids: Online resource for children with chronic or life-threatening illnesses and disabilities. Users can search by resource type (such as financial assistance, camps, support groups) and by disease or condition.
Cancer Profiler: The Cancer Profiler is a tool to help you better understand potential treatment options for leukemia. Users will need to register with the site (no charge) to access the tool, and take a short (15-20 minute) survey in order to get their potential treatment information. There is also a very helpful glossary.
Candlelighters Childhood Cancer Foundation: A great resource for families with a child affected by cancer. Treatment, support, advocacy, legislative updates, and a great deal of publications can be found here, as well as links to websites specifically geared to kids, teens, and siblings.
MedlinePlus is a service of the U.S. National Library of Medicine and the National Institutes of Health. This wonderful site includes information on various health topics, an index of prescription and over-the-counter medications, a medical encyclopedia, dictionary, news, directories, and other resources.
National Cancer Institute: This is an extremely well-organized site with information on conditions, treatment, prevention, causes, support and resources, clinical trials and literature, and a comprehensive dictionary.
National Children's Cancer Society: Again, this website has a huge variety of resources and assistance to offer.
Outlook: A wonderful resource for "life beyond childhood cancer". Primary topics include insurance and financial issues, health issues and concerns, school and job issues, and there is a very large bank of resources.
People Living With Cancer is the patient information website for the American Society of Clinical Oncology (ASCO). Here you will find coping resources, clinical trial information, strategies for managing side effects, "Ask the ASCO Expert" series, the latest cancer news, and much more.
St. Jude Children's Research Hospital: This is the gateway to the leukemia, lymphoma and myelodysplastic information at St. Jude Children's Research Hospital.
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INFORMACIÓN EN ESPAÑOL:
CancerCare
Convivir con el cáncer, PLWC
Teens Living with Cancer
Linfoma no Hodgkin durante el embarazo
Linfoma no Hodgkin en adultos
Ayuda con recetas médicas para los residentes del estado de Illinois
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LEUKEMIA RESOURCES:
Leukemia information from About.com
Leukemia Information Center at CancerConsultants.com. The information is written by a medical team, and received the 2004 award for best Medical Communications Information for Patient Education by the National Health Information Awards.
Pediatric leukemia from Childhood Leukemia Center
Children's Cancer Web leukemia section. This site is very comprehensive, with a great section on international support resources and links.
Kids Health has explanations about leukemia, written in language for kids, and for parents
National Cancer Institute'spage on leukemia
Adult AML and ALL from MD Anderson Cancer Center
Leukemia information from Memorial Sloan-Kettering Cancer Center
CML (chronic myeloid leukemia or chronic myelogenous leukemia). Find out more information on the disease, support and more.
OncoLink: This link is to the main leukemia page of OncoLink, so it covers the four main types in addition to Hairy Cell Leukemia and Myeloproliferative Disorders. We also recommend using the website's "Quick Search" function, because you will pull information from their entire site - "ask the experts", treatment options, journal articles, etc.
Leukemia information from Oncology Channel
Adult and childhood leukemia from the University of Michigan. This link is to the general leukemia section, but links to childhood leukemia and subtypes are available on the same page.
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LYMPHOMA / HODGKIN'S DISEASE RESOURCES:
Hodgkin's Lymphoma Information Center at CancerConsultants.com. The information is written by a medical team, and received the 2004 award for best Medical Communications Information for Patient Education by the National Health Information Awards.
HodgkinsNET is an online support group for people of all ages who have had or currently have Hodgkin's lymphoma, and also for caregivers for current or past patients
Childhood Hodgkin's Disease section of Children's Cancer Web
History of Innovations in the Treatment of Lymphoma, sponsored by Genentech
Lymphoma Information Network: Very comprehensive site about Hodgkin's and Non-Hodgkin's Lymphomas, with areas for both adults and children.
Lymphoma Research Foundation
Kids Health page on Hodgkin's Disease.
Childhood lymphomafrom Kids Health
Adult Hodgkin's information from MD Anderson Cancer Center
Childhood Hodgkin's Disease from MD Anderson Cancer Center
National Cancer Institute's page
Oncology Channel This link is to the Lymphoma / Hodgkin's Disease page of OncoLink. We also recommend using the website's "Quick Search" function, because you will pull information from their entire site - "ask the experts", treatment options, journal articles, etc.
Lymphoma information from the University of Michigan
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NON-HODGKIN'S LYMPHOMA RESOURCES:
Non-Hodgkin's Lymphoma Information Center at CancerConsultants.com. The information is written by a medical team, and received the 2004 award for best Medical Communications Information for Patient Education by the National Health Information Awards.
Non-Hodgkin's Lymphoma section of the Children's Cancer Web site
Fact Sheet from Genentech
History of Lymphoma, sponsored by Genentech
Lymphoma Information Network. Very comprehensive site about Hodgkin's and Non-Hodgkin's Lymphomas, with areas for both adults and children.
Lymphoma Net is devoted specifically to non-Hodgkin's lymphoma, and offers a great deal of information on the disease itself, what to expect in terms of treatment and clinic visits, new advancements in treatment and research, and many other resources.
Lymphoma Research Foundation
Adult non-Hodgkin's lymphoma Q&A from MD Anderson Cancer Center
National Cancer Institute's page on non-Hodgkin's lymphoma
OncoLink: This link is to the Lymphoma / Hodgkin's Disease page of OncoLink. We also recommend using the website's "Quick Search" function, because it will pull information from their entire site - "ask the experts", treatment options, journal articles, etc.
Oncology Channel
Patient-Centered Guide on non-Hodgkin's lymphoma
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MYELODYSPLASTIC SYNDROMES:
Aplastic Anemia & MDS International Foundation
MDS information from Association of Cancer Online Resources, formerly GrannyBarb & Art's page
The MDS Foundation
National Cancer Institute
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FINANCIAL ASSISTANCE:
American Cancer Society: Click on "My Community", type your city or ZIP code, and then click on "Local Resources". This will allow you to search a database of support.
Amgen Pharmaceuticals can sometimes reimburse you for the cost of the following medications: Aranesp, Neulasta, and Neupogen. You can also call Amgen at 800-272-9376 to get more information.
CancerCare
Center for Medicare and Medicaid Services
Clayton Dabney Foundation for Kids with Cancer offers grants to families for gifts, last wishes, and financial assistance.
First Hand Foundation helps families of children with health problems.
If you are taking Rituxan, manufactured by Genentech, check their Single Point of Contact website for information on reimbursement.
GlaxoSmithKline has a patient assistance program for people taking Bexxar, Leukeran, Myleran and Zofran.
Illinois Prescription Buying Club
Leukemia and Lymphoma Society
Lymphoma Research Foundation
The National Marrow Donor Program assists patients with finances related to transplant-related costs
Click to see if you are eligible for federal assistance through Medicare.
National Children's Cancer Society
Novartis Pharmaceuticals may be able to provide reimbursement if you are taking Gleevec. Call 877-GLEEVEC (877-453-3832).
Partnership for Prescription Assistance is a list of pharmaceutical companies offering prescription reimbursement.
Ortho-Biotech may be able to provide reimbursement for patients taking Leustatin or Procrit.
Rx4Illinois is a program that connects qualified, low-income people with discount prescription drugs, direct from the pharmaceutical manufacturer. Make sure you check out their resources page for other assistance.
RxAssist offers a comprehensive database of patient assistance programs, as well as practical tools, news, and articles.
Schering-Plough, manufacturer of Intron A, has a patient assistance and support program.
State Pharmaceutical Assistance Programs
Together Rx Access card was launched in January 2005, and could give people without health insurance the chance to save 25-40% on prescriptions. It is only for legal U.S. residents who lack public or private prescription-drug coverage, are ineligible for Medicare, and who earn less than $30,000 per year (for individuals) or less than $60,000 per year (for a family of four).
NeedyMeds has lists of patient assistance programs offered by pharmaceutical companies
This section of OncoLink has great information on insurance, billing, and other financial information, along with a glossary of terms.
Wyeth Oncology has a Patient Assistance program where patients can receive certain products, such as Mylotarg, free of charge.
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EMOTIONAL SUPPORT RESOURCES AND PERSONAL STORIES:
Discussion lists and Support and information resources from the Association of Cancer Online Resources. For the discussion lists, you'll want to search by specific type of leukemia, such as ALL, instead of simply "leukemia".
Brave Kids message boards for parents and for kids. The boards are for general cancer posts, not specific to leukemia, lymphoma, or MDS, although topics within the board are certainly appropriate.
Set up your own website at Caring Bridge and keep your friends and family updated on your treatment progress.
ChemoAngels provides support for people with cancer
Survivors' Stories from Association of Cancer Online Resources, formerly GrannyBarb & Art's website
Online support resources from Association of Cancer Online Resources, formerly GrannyBarb & Art's website
HodgkinsNET is an online support group for people of all ages who have had or currently have Hodgkin's lymphoma, and also for caregivers for current or past patients
Kids With Cancer was started by Michelle Lose, Ms. Illinois International 2003 and Mrs. Illinois Galaxy 2007, mother of a leukemia survivor, and a great supporter of the Foundation
Lymphoma Research Foundation forums
The National Association of Hospital Hospitality Houses is a network of houses all around the United States. They provide lodging and support for people of all ages and all walks of life who are dealing with medical emergencies far from their homes.
Outlook – Life Beyond Childhood Cancer: Stories by and about survivors of childhood cancer
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SPECIFIC RESOURCES FOR YOUNG ADULTS WITH CANCER:
Beyond the Cure is sponsored by the National Children's Cancer society, and has information about the late effects of cancer treatment for those diagnosed with cancer as children or teenagers.
Planet Cancer sponsors retreats for 25-40 year-olds with cancer, and also offers a clearinghouse for support groups, camps and informal gatherings geared toward young adults with cancer.
Teens Living With Cancer is a fantastic website sponsored by Melissa's Living Legacy Foundation and Children's Oncology Group.
Group Loop is an online support group for teenagers with cancer.
Fertile Hope helps cancer patients deal with fertility issues associated with cancer treatment.
Ulman Cancer Fund for Young Adults offers support, education, and resources, including a free guide book for young adults facing cancer.
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TRANSPLANTATION – STEM CELL, CORD BLOOD, BONE MARROW, AND DONATING THE SAME:
Asian American Donor Program
Blood & Marrow Transplant Information Network
Links from Candlelighters Childhood Cancer Foundation
Bone Marrow Transplant Resources from the Association of Cancer Online Resources, formerly GrannyBarb & Art's website
Cord Blood Transplant links from the Association of Cancer Online Resources, formerly GrannyBarb & Art's website
The Marrow Foundation
National Foundation for Transplants
National Marrow Donor Program and specifically for post-transplant care guidelines, click here
Center for International Blood and Marrow Transplant Research for post-transplant guidelines
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CLINICAL TRIALS:
Leukemia Research Foundation's Clinical Trials page
American Cancer Society
Links from Candlelighters Childhood Cancer Foundation
Clinical Trial information from the Association of Cancer Online Resources, formerly GrannyBarb & Art's website
Gamida Cell
National Cancer Institute. See also: Clinical Trials and Insurance coverage, and Medicare coverage of Clinical Trials
National Institutes of Health
OncoLink
Veritas Medicine
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LINKS TO CANCER RESOURCES AROUND THE WORLD:
National Children's Cancer Society's Global Outreach Program
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